Speakers
Dr. Rebecca G. Baker, Ph.D., is the director of the Helping to End Addiction Long-termSM Initiative, or NIH HEAL…
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Dr. Jeff Barrett is Senior Vice-President at the Critical Path Institute serving as the Executive Director of the Rare Disease Cures Accelerator, Data Analytics Platform…
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Ronald Bartek is co-founder and president of Friedreich’s Ataxia Research Alliance. A former partner and president of a business…
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Dr. Richard Benson is Director of the Office of Global Health and Health Disparities (OGHHD) in the NINDS Division of Clinical…
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Robyn Bent joined the US FDA in 2019 as the director of the Patient-Focused Drug Development (PFDD) Program…
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Dr. Allyson Berent is a veterinary internal medicine specialist who serves as the Director of Interventional Endoscopy Services…
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Elizabeth Berry-Kravis MD, PhD is a Professor of Pediatrics, Neurological Sciences, and Biochemistry at Rush University Medical Center…
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Geraldine Bliss is the president and co-founder of CureSHANK, a nonprofit organization with the goal of accelerating drug…
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David Cella is the Ralph Seal Paffenbarger Professor of Health Care Studies and Chair of the Department of Medical Social Sciences at Northwestern University Feinberg…
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Susan Dickinson, MS, CGC, AFTD Chief Executive Officer (CEO), joined AFTD in February 2008. A genetic counselor, she…
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Dr. Ray Dorsey is the David M. Levy Professor of Neurology and Director of the Center for Health + Technology at the…
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Paul Gross is a driving force in accelerating clinical and translational research in neuroscience for cerebral palsy and…
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Janet Hieshetter serves as the Executive Director of the Dystonia Medical Research Foundation (DMRF). She joined the DMRF…
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Laura Lee Johnson, Ph.D. is a division director in the Office of Biostatistics at the U.S. Food and…
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Roger is a native of Lowell, Massachusetts, and holds a Master of Divinity degree from Weston School of Theology in Cambridge,…
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Dr. Maitre is a board-certified neonatologist and research investigator with a focus on neurodevelopment in high-risk newborns and…
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Mary Anne was a founding member of the Dravet Syndrome Foundation (DSF), stepping off of the Board to…
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Director Office of Rare Diseases Research National Center for Advancing Translational Sciences (NCATS) National Institutes of Health (NIH)…
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Dr. Pichard has focused her career on patients with rare disorders and complex medical needs. Prior to joining the International…
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Nina F. Schor, MD, PhD is Deputy Director of the NINDS and a Senior Faculty Associate at the University of…
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In November of 2012, Monica’s twin son, Beckett, was the first to be diagnosed at Texas Children’s Genetics…
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Dr. Samantha White is currently Chief of the Scientific and Public Engagement Branch in the Office of Neuroscience Communications…
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Susan Schneider Fine Art Artist and Advocate for Lewy Body Disease Research In 2014, when her husband Robin…
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