THE NINDS NONPROFIT FORUM

The National Institute of Neurological Disorders and Stroke (NINDS) invites members of nonprofit organizations to an annual Nonprofit Forum. The Progress through Partnership Forum provides an opportunity for nonprofit leaders to network with colleagues and to engage in discussions with NINDS staff.

This year’s Forum will be hosted in person at the Neuroscience Center Building located at 6001 Executive Boulevard, Rockville, MD 20852, and virtually via Zoom Webinar.

Chelsey Carter

Keynote Speaker, Chelsey Carter

Chelsey is an Assistant Professor of Public Health in the Department of Social and Behavioral Sciences at Yale University, with a secondary affiliation in the Department of Anthropology.

Agenda

Empowering Patient Populations

Tuesday, July 23rd

9:00 a.m. ETMeet and Greet with NINDS Program Directors and Staff
10:00 a.m. ETWelcome: Dr. Walter Koroshetz, Director,  NINDS
10:15 a.m. ETKeynote Speaker: Chelsey Carter, Health Disparities and Diversity in Research
11:00 a.m. ET

Panel Session and Discussion: Increasing Patient Participation and Engagement in Rural Areas

Moderator:  Richard Benson, NINDS

12:15 p.m. ETLunch (On Your Own) and Networking
1:30 p.m. ET

Panel Session and Discussion: Empowering Participants Through Their Data and Use

Moderator:  Adam Berger, National Institutes of Health, Office of Science Policy

2:45 p.m. ET

Panel Session and Discussion: Artificial Intelligence: Opportunities and Challenges for Nonprofit Organizations and Patients

Moderator:  Katie Sale, American Brain Coalition

4:00 p.m. ETPoster Session and Networking
6:00 p.m. ETDinner (On Your Own) and Networking

Wednesday, July 24th

9:00 a.m. ETPoster Session and Networking and Informal Roundtable Conversations 
10:00 a.m. ETWelcome and Recap Day 1
10:15 a.m. ET

Panel Session and Discussion: Engaging Participants throughout the Clinical Trial, Drug Development and Device Design Process

Moderator:  Louise Vetter, Huntington’s Disease Association of America

11:30 a.m. ET

Success Stories: Co-Learning Amongst Nonprofits: Nonprofit Ambassador Programs

Moderator:  Jen French, Neurotech Network

12:45 p.m. ETForum Wrap Up
1:00 p.m. ETLunch (On Your Own) and Networking

* Lunch Options during the Forum: Federal Government regulations prohibit meals from being provided at the 2024 NINDS Nonprofit Forum. In-person attendees should anticipate securing their food and beverages while on site. Nearby lunch options may be found here and pre-ordered boxed lunch options will be available. Information on ordering box lunches will be provided closer to the Forum.

Thank you to the 2024 NINDS Nonprofit Forum Executive Committee for their time and dedication in developing this year’s program content.

Topics of Interest?

The Nonprofit Forum’s overarching goal is “Progress Through Partnership.”  Please let us know if you have ideas for session topics for future NINDS Nonprofit Forums here.

Past Forum Recordings