2022 Agenda

Tuesday, July 19, 2022

Day 1 Meeting Recording

10:00 a.m. ET	NINDS Director’s Welcome (Jump to Recording) Walter Koroshetz, NINDS
10:30 a.m. ET	Keynote Speaker (Jump to Recording) Julie Gerberding, Foundation for the National Institutes of Health
11:15 a.m. ET	Patient Advocacy in Commercialization – How to Work with Industry (Jump to Recording) Moderator: Geraldine Acuna, Sunshine Care Foundation for Neurological Care and Research Katherine Beaverson, Pfizer Laura Mitic, Bluefield Project to Cure FTD Yael Weiss, Mahzi Therapeutics
12:15 p.m. ET	Supporting Science as a Small Business: How to Find Innovative Methods to Fund Research (Jump to Recording) Moderator: Geraldine Bliss, CureSHANK Emily Caporello, NINDS Ken Schaner, Schaner and Lubitz Jill Wood, Phoenix Nest Inc.
1:15 p.m. ET	Lunch and Networking with Program Staff
2:15 p.m. ET	Leveraging Progress Across the Scientific Pipeline – How to Work with Academic Researchers (Jump to Recording) Moderator: Penny Dacks, The Association for Frontotemporal Degeneration Kenneth Fischbeck, NINDS David Limbrick, Hydrocephalus Association and Washington University School of Medicine Sabrina Paganoni, Neurological Clinical Research Institute Massachusetts General Hospital; Sean M. Healey & AMG Center for ALS Miguel Sena-Esteves, University of Massachusetts
3:15 p.m. ET	Engaging Trainees and Early Stage Scientists: How to Work with Academic Researchers Lightning Round Talks (Jump to Recording) Moderator: Nina Schor, NINDS Diane Bovenkamp, BrightFocus Foundation Jennifer Brummet, American Epilepsy Society Eric Morrow, Brown University Daniel Okobi, University of California, Los Angeles Golshani Lab
4:00 p.m. ET	Wrap-Up (Jump to Recording)

Wednesday, July 20, 2022

Day 2 Meeting Recording

10:15 a.m. ET	Welcome and Introduction to Day 2 (Jump to Recording)
10:30 a.m. ET	Success Stories (Jump to Recording) Moderator: Tish Hevel, The Brain Donor Project Jim Beck, Parkinson’s Foundation Agustin Ibanez, The ReDLat Consortium and Global Brain Health Institute Kevin O’Connor, Yale School of Medicine and Myasthenia Gravis Foundation of America, Inc
11:30 a.m. ET	Reaching your entire community – How to Work Together to Achieve Equity and Inclusivity (Jump to Recording) Moderator: Janet Hieshetter, Dystonia Medical Research Foundation Indu Navar, Everything ALS Todd Schwedt, Mayo Clinic Maria del Pilar Trelles Thorn, The Seaver Autism Center for Research and Treatment at the Icahn School of Medicine at Mount Sinai Heather Watkins, Disability Advocate, Author and Blogger
12:30 p.m. ET	Lunch and Networking
1:30 p.m. ET	Nonprofit to Nonprofit Best Practices and Feedback Breakout Sessions
3:00 p.m. ET	Adjourn