UPDATE: The 2022 NINDS Nonprofit Forum Now Virtual

The NINDS Nonprofit Forum has changed from a hybrid to all-virtual format. This decision was not made lightly and was made in consideration of local COVID-19 case levels, which have remained at the medium COVID-19 community level since mid-May 2022 and the registration numbers have indicated a strong majority of attendees desire to remain virtual.  


The National Institute of Neurological Disorders and Stroke (NINDS) invites members of interested nonprofit organizations to our annual Nonprofit Forum. The Progress through Partnership Forum provides an opportunity for nonprofit leaders and their membership to network with colleagues and engage in discussions with NINDS staff and leadership.

This year’s virtual meeting is structured around the overarching theme of “How to Work With…” from industry, to research partners, to NIH – including how to find innovative methods to fund research. We would like to thank the 2022 Forum Executive Committee for their work in identifying the goals, topics, and speakers for this year’s event!

We look forward to your participation.


1:1 and Small-group meetings with Program Staff will be scheduled via Zoom outside of main Agenda timeframe on Monday July 18th, the lunch break and networking periods on Tuesday July 19th and Wednesday July 20th, after 3pm ET on Wednesday July 20th, and on Thursday July 21st. All meetings are scheduled based on the availability of our busy program staff. Please check back for the sign-up form in the coming weeks.

A more detailed agenda can be found on the Agenda Page.

Tuesday, July 19th

10:00 a.m. ETNINDS Director’s Welcome
10:30 a.m. ETKeynote Speaker
11:15 a.m. ETPatient Advocacy in Commercialization – How to Work with Industry
12:15 p.m. ETSupporting Science as a Small Business: How to Find Innovative Methods to Fund Research
1:15 p.m. ETLunch and Networking with Program Staff
2:15 p.m. ETLeveraging Progress Across the Scientific Pipeline – How to Work with Academic Researchers
3:15 p.m. ETEngaging Trainees and Early Stage Scientists:  How to Work with Academic Researchers Lightning Round Talks
4:00 p.m. ETWrap-Up

Wednesday, July 20th

10:15 a.m. ET Welcome and Introduction to Day 2
10:30 a.m. ET Success Stories
11:30 a.m. ET Reaching your entire community – How to Work Together to Achieve Equity and Inclusivity
12:30 p.m. ET Lunch and Networking
1:30 p.m. ET Nonprofit to Nonprofit Best Practices and Feedback Breakout Sessions
3:00 p.m. ET Adjourn