Aliza Fink, D.Sc. is the Director of Research Programs at the National Organization for Rare Disorders (NORD®). In this role, she provides support, technical expertise and infrastructure for rare disease patient advocacy groups to engage in research through the development of natural history studies using patient-reported data, grant management support, engaging in the development of clinical outcome assessments and data standards, and supporting a culture of data sharing. Previously, she lead a program of registry-based research as the Senior Director of Real World Research at the Cystic Fibrosis Foundation and supported CDC’s National Program of Cancer Registries. Dr. Fink has a DSc in epidemiology from the Boston University School of Public Health.