THE NINDS NONPROFIT FORUM
The National Institute of Neurological Disorders and Stroke (NINDS) invites members of nonprofit organizations to an annual Nonprofit Forum. The Progress through Partnership Forum provides an opportunity for nonprofit leaders to network with colleagues and to engage in discussions with NINDS staff.
Agenda
Wednesday, July 7th
11:30-11:45 a.m. ET | NINDS Director’s Welcome |
11:45 a.m.-12:30 p.m. ET | Keynote (30-min. presentation; 15-min. Q & A) |
12:30-1:30 p.m. ET | Clinical Solutions Following COVID: New Opportunities in New Times (45-min. presentation; 15-min. Q & A) Speakers: Liz Barry Kravis (Rush Memorial), Ray Dorsey (Univ. of Rochester), Laura Lee Johnson (FDA), Anne Pariser (ORDR) |
1:30-2:00 p.m. ET | BREAK (Free-form Networking for Participants; 1:1 chats with NINDS Staff) |
2:00-2:45 p.m. ET | Meet the Program Directors (breakout session) |
2:45-3:00p.m. ET | Wrap Up |
Thursday, July 8th
11:30 a.m.-12:30 p.m. ET | Patient Engagement: Co-Producing Clinical Success Speakers: Rebecca Baker (HEAL Initiative), Robyn Bent (FDA), Roger Lamoureux (Adelphi Values), Mary Anne Meskis (Dravet Syndrome Foundation) |
12:30 p.m.-12:40 p.m. ET | BREAK |
12:40-1:40 p.m. ET | Nonprofit Tools and Resources of Note Speakers: Jeff Barrett (C-PATH), David Cella (PROMIS), Samantha White (NINDS) |
1:40-1:45 p.m. ET | BREAK |
1:45-2:45 p.m. ET | Success Stories: Importance of Early Diagnoses Speakers: Allyson Berent (FAST), Nathalie Maitre (Nationwide Children’s Hospital), Dominique Pichard (Rett Syndrome) |
2:45-3:00 p.m. ET | Wrap Up |